Today is Undiagnosed Children’s Day. Did you know that children who have no formal diagnosis are called SWANS? Syndromes Without A Name. Most of the time I’m not troubled by the fact that Edith is officially undiagnosed. Since birth, Edith has only ever shown progression and I think this helps me a lot. However, it’s [...]
Tag: videofluoroscopy
Nil by Mouth…
After a series of visits to hospital for chest infections throughout 2016, it came to the doctors attention that Edith had consistent changes on the middle lobe of her right lung. Edith had 4 x-rays in total last year, 3 when she was unwell and 1 when she was well, these all showed the same [...]