A bit like a unicorn or a mermaid…

Today is Undiagnosed Children’s day💕 To date we still have no definitive diagnosis for our Little E. At times, this is incredibly difficult. I’m not saying having a diagnosis would be any easier but it may give us some answers; some connections. What we know is that Edith is Hypotonic (floppy), she has developmental delay [...]

This time next year…

It's kind of hard to believe that this time next year Edith will be at school. Being born in February is actually a great advantage for her as it means she will almost be five when she starts school, this gives her a little extra time to develop before she starts full time education. Before [...]