A really honest and raw account of going through cancer whilst supporting a disabled child. It’s a long one so maybe put the kettle on first. It may not be the worst experience but it’s my experience. If you need help; https://www.mind.org.uk/ https://www.jostrust.org.uk/ https://contact.org.uk/
Today is Undiagnosed Children’s day💕 To date we still have no definitive diagnosis for our Little E. At times, this is incredibly difficult. I’m not saying having a diagnosis would be any easier but it may give us some answers; some connections. What we know is that Edith is Hypotonic (floppy), she has developmental delay [...]
Sorry, it's been a while since my last post. Edith was discharged from hospital on 18th April after 9 days. Life since our discharge has been somewhat different and to be completely honest, a massive struggle. When you are mum to a new born and you are first discharged from hospital there are a lot [...]
