Surviving the S**t Storm…

A really honest and raw account of going through cancer whilst supporting a disabled child. It’s a long one so maybe put the kettle on first. It may not be the worst experience but it’s my experience. If you need help; https://www.mind.org.uk/ https://www.jostrust.org.uk/ https://contact.org.uk/

A bit like a unicorn or a mermaid…

Today is Undiagnosed Children’s day💕 To date we still have no definitive diagnosis for our Little E. At times, this is incredibly difficult. I’m not saying having a diagnosis would be any easier but it may give us some answers; some connections. What we know is that Edith is Hypotonic (floppy), she has developmental delay [...]

Come fly with me…

So next month we are jetting off to the warm shores of Alcudia in Majorca. To say we need a holiday is a massive under statement and the excitement is now beginning to set in! We booked this holiday last August so it has been a long time coming as our last holiday was January [...]