Today is Undiagnosed Children’s day💕 To date we still have no definitive diagnosis for our Little E. At times, this is incredibly difficult. I’m not saying having a diagnosis would be any easier but it may give us some answers; some connections. What we know is that Edith is Hypotonic (floppy), she has developmental delay [...]
Tag: Brain Damage
Five Blissful Weeks…
Edith and I were discharged from hospital the day after her birth with all the boxes ticked. I often think of the 5 weeks of blissful happiness that followed, that's how long it was before we were told that something was seriously wrong. Edith fed well and seemed extremely settled at home. She was suffering [...]