Springboard is a charity based in North Somerset. It supports children with additional needs and their families from birth to 5 years old.
After a series of visits to hospital for chest infections throughout 2016, it came to the doctors attention that Edith had consistent changes on the middle lobe of her right lung. Edith had 4 x-rays in total last year, 3 when she was unwell and 1 when she was well, these all showed the same [...]
I am not a religious person. My parents had me christened but I think that's because, in the 80's that's what a lot of people did. We never went to church and I do not follow any kind of faith. However, saying that, I do believe our loved ones that have passed watch over us [...]
Edith and I were discharged from hospital the day after her birth with all the boxes ticked. I often think of the 5 weeks of blissful happiness that followed, that's how long it was before we were told that something was seriously wrong. Edith fed well and seemed extremely settled at home. She was suffering [...]
No one wants to believe that there might be something wrong with their unborn child, but at our 20 week scan the sonographer placed a small seed of doubt in my mind. Although I have never spoken of this to Dan (Edith's daddy) I think from that day on there was a teeny, tiny, subconscious [...]
Edith is a very special little girl. She is so rare and unique, she still remains undiagnosed. What we Know So although Edith has no formal diagnosis we are very fortunate to still be able to explain some of her difficulties. Edith has a brain malformation known as delayed myelination of the white matter. This [...]