The views and opinions expressed in this post are my understanding of this project and not necessarily 100% accurate. The process in which we went through may differ from others.
Our PEG Journey 13.06.17
(The Beautiful Island)
Being born with physical difficulties means that there is very little Edith is able to enjoy. She has a short attention span and will only tolerate a small amount of T.V in one sitting and is very limited to what she can play with independently. Unlike most children Edith is not able to run around [...]
So next month we are jetting off to the warm shores of Alcudia in Majorca. To say we need a holiday is a massive under statement and the excitement is now beginning to set in! We booked this holiday last August so it has been a long time coming as our last holiday was January [...]
Sorry, it's been a while since my last post. Edith was discharged from hospital on 18th April after 9 days. Life since our discharge has been somewhat different and to be completely honest, a massive struggle. When you are mum to a new born and you are first discharged from hospital there are a lot [...]
So after my last post things progressed very quickly in the wrong direction. As Monday began instead of starting to breathe slower, Edith began to breath much faster and looked beyond exhausted. That morning the doctors came to us on their ward rounds and it just so happened that the doctor on that day was [...]
Edith's ability to fight a common virus can turn on a penny. So far this year we have managed to avoid any bugs but yesterday after a bit of a miserable Saturday, Edith went downhill very quickly. We went from miserable toddler with a bit of sniffle on Saturday to Sunday evening breathing erratically and [...]
Springboard is a charity based in North Somerset. It supports children with additional needs and their families from birth to 5 years old.
After a series of visits to hospital for chest infections throughout 2016, it came to the doctors attention that Edith had consistent changes on the middle lobe of her right lung. Edith had 4 x-rays in total last year, 3 when she was unwell and 1 when she was well, these all showed the same [...]