Hi, my name is Kirsty and I am a mum to a very special little girl called Edith. Like many other mum’s, I have decided to start a blog to document her journey. In this blog I will share past and present stories and hopes for the future (not necessarily in chronological order). I will take you through the highs, lows, little victories and big victories! I hope you enjoy reading about our unique and very personal adventures.